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Analysis of Factors Facilitating Burden of Care in Caregivers of Children with Hemophilia
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Fatemeh Zanganeh    , Mohammad Hadi Safi * , Bijan Keikhaei Dehdezi |
| Department of Counseling, Faculty of Humanities and Social Sciences, Ardakan University, Ardakan, Iran , m.h.safi@ardakan.ac.ir |
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Abstract: (12 Views) |
Background & aim: Hemophilia is a chronic bleeding disorder that accompanies the patient until the end of his life. Affected patients require a lot of care and support, and their caregivers bear a lot of burden of care. Therefore, this study was conducted with the purpose of investigating the factors facilitating burden of care in caregivers of children with hemophilia.
Methods: The research method was a qualitative phenomenological type. The statistical population of the research included all the caregivers of children with hemophilia referred to Baghaei two hospital in city of Ahvaz, and 26 caregivers were selected by available sampling and snowball from the considered statistical population and were investigated using a semi-structured interview until reaching data saturation.
Results: Data analysis led to two main themes and five sub-themes. The main theme of persistent treatment problems included subthemes (problems related to treatment follow-up and financial issues and problems related to receiving treatment), and the main theme of external stresses included (personal problems of the caregiver, communication problems with the sick child and lack of effective support).
Conclusion: Caregivers of hemophiliac children, who are mainly the parents of the sick child, bear additional pressure for care and have many problems such as not having a suitable job, difficult conditions of the sick person and lack of medication and communication problems; therefore, special prevention, treatment and rehabilitation programs for these caregivers should be planned and implemented. |
Article number: 3 |
| Keywords: Burden of Care, Factors Facilitating, Caregivers of Children, Hemophilia |
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Full-Text [PDF 1322 kb]
(13 Downloads)
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Type of Study: Research |
Subject:
Special
Received: 2026/05/15 | Accepted: 2026/06/16 | Published: 2026/07/11
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